ASD

When I was in college I wrote a paper on autism for a sociology class. I took some ribbing from my friends because they asked “Is that really a problem?” I replied “Well, it would be if there were more autistic people.” Apparently, I was ahead of my time but naive. Due to improved awareness, broader diagnostic criterai and more widespread screening , we are more knowledgeable about the extent of this condition.

Autism is defined as ” a neurodevelopmental disorder associated with symptoms that include “persistent deficits in social communication and social interaction across multiple contexts” and “restricted, repetitive patterns of behavior, interests, or activities.”  

According to the Centers for Disease Control and Prevention (CDC), the prevalence of autism specturm disorder (ASD) in the United States is estimated to be one in 31 children in the United States diagnosed by age eight and one in 45 adults. There are now therapists who specialize in autism. Support groups are available. The school system in the small routine Montana town from which I recently moved had special accomodations for children with autism and ADHD, little rooms for emotional regulation when emotions seemed too big, chairs that allowed for movement.

The five common signs of autism include difficulties with social interaction, communication challenges, repetitive behaviors, sensory sensitivities and intense or unusual interests. Although “on the spectrum” is bandied about rather casually now, there are five diagnoses within the category, four rather severe to include Rett syndrome, childhood disintegrative disorder, Kanner’s syndrome and pervasive developmental disorder. The higher functioning autism was formerly called Aspberger’s syndrome. All can vary in how they manifest themselves in an individual and in their severity.

It is no coincidence that I address this issue as we are currently with our grandchildren, including our oldest who was diagnosed last year with ADHD and high functioning autism. He started “flapping” at age 2, flapping his arms, one of the noticeable repetetive behaviors. But in so many ways he seemed to be developing normally that it was easy to rationalize that it was simply “being two.” Over time, however, he has demonstrated repetitive behaviors that are offputting to other children in particular, making very strange faces, sniffing people. Yet he is a bright child, a kind, gentle soul, a great big brother to his two younger siblings. He is affectionate. He interacts, makes friends. In many ways he would be indistinguishable in his behavior from other children his age. He has benefitted greatly from social skills training, one of several treatment modalities.

In some ways this serves as a followup to last week’s blog on “Outside the Box.” We live in such a diverse world. How much better we are when we open ourselves to understanding the diverse people who live in it.

“Autism is not a processing error. It is a different operating system.” Sarah Hendrickx

The invitation is open to share two cups of tea anytime at Hope’s Café or anywhere you share companionship and conversation.

May we bearers of hope, the “wait staff” at Hope’s Café, for each other and all those we encounter.  Shalom, Kate

 

Living Outside the Box

Before I ever was pursuing ordination, I first explored being commissioned as a spiritual director. Because I am a bit quirky, in my own estimation, and perhaps that of many others, I didn’t quite look especially “commissionable” to some on the committee. Our interim pastor at the time reported a conversation she had had with one of the committee members who asked her, ” Do you think Kate is scattered?” My pastor, bless her, said, “I’ve never known a spiritual director who wasn’t because they keep all their channels open. If I ever need to know anything about what is going on within the church, I turn to Kate, who has her finger on the pulse.”

A niece of mine often posts that she is weird or quirky. Good! Join the club! The world is better for those who can live authentically. So live your “weirdness.” Not everyone is so blessed.

One of my tasks when I was in the ministry course that did in fact lead to my ordination, was to put together a portfolio. In one section, I used the following quote:

“HERE’S TO THE CRAZY ONES.  THE MISFITS.  THE REBELS.  THE TROUBLEMAKERS.  THE ROUND PEGS IN SQUARE HOLES.  THE ONES WHO SEE THINGS DIFFERENTLY.  THEY’RE NOT FOND OF RULES.  AND THEY HAVE NO RESPECT FOR THE STATUS QUO.  YOU CAN QUOTE THEM, DISAGREE WITH THEM, GLORIFY OR VILIFY THEM.  ABOUT THE ONLY THING YOU CAN’T DO IS IGNORE THEM.  BECAUSE THEY CHANGE THINGS.  THEY PUSH THE HUMAN FORCES.  AND WHILE SOME MAY SEE THEM AS THE CRAZY ONES, WE SEE GENIUS.  BECAUSE THE PEOPLE WHO ARE CRAZY ENOUGH TO THINK THEY CAN CHANGE THE WORLD, ARE THE ONES WHO DO.”—APPLE INC.

I complained a lot about hoops (more than I care to remember) that I jumped through to reach ordination. But I also have some compassion for the folks who were charged with considering my fitness for ministry. I could hardly blame them that they found me a mystery, or perhaps, more of a problem child. I even joked with my mentor that the song in “The Sound of Music” described my relationship with my committee: “How do you solve a problem like Maria?
How do you catch a cloud and pin it down?
How do you find a word that means Maria?
A flibbertigibbet! A will-o’-the wisp! A clown!”

So here’s to all those who by their nature live “outside the box,” who seek to live their authentic selves.

The invitation is open to share two cups of tea anytime at Hope’s Café or anywhere you share companionship and conversation.

May we bearers of hope, the “wait staff” at Hope’s Café, for each other and all those we encounter.  Shalom, Kate

Dissonance

Two Cups of Tea at Hope’s Café

John Prine, a favorite musician of ours, who died well before his time in the covid pandemic, told the story of being approached at a performance,  asked to play “It’s a Happy Enchilada.”  He didn’t recognize that as anything he had ever written or sung so he asked her to sing the tune.  When she did, he realized the line she was quoting was actually “It’s a half an inch of water and you think you’re going to drown” from the song “That’s the Way That the World Goes ‘Round.” 

Of late am in despair for the world.  Even as I live in comfort, I recognize how many do not…and how many more will not as more and more resources are eliminated, how systems we have relied on are diminished or destroyed.   I fret that I am not doing enough. I know that I’m not.  I chastise myself that I’m living like “It’s a Happy Enchilada” and “That’s the Way that the World Goes ‘Round.”

  My mother and father married in 1938 as things were heating up in Europe.  I wish now I had had more conversations with them about that era.   My mother had my brother Eddy in 1939.  She was a young mother in a marriage that was new.  I think how frightening those times must have been.  I remember that after the United States became involved, she was very concerned about her brother who was serving in the Coast Guard. She talked about rationing that was policy and how people learned to adapt.  But mostly I remember Eddy recalling how when there were “blackouts” at night, she would pop popcorn and make an adventure of it to minimize the impact on him. 

There seems to be a message in my mother’s behavior.  In the face of difficult, even desperate, times, we can be present to others, practical in our responses, creative in our adaptations.  When there is so much we can not affect, we have the capacity to focus on what we can.  This doesn’t necessarily eliminate dissonance but goes a long way towards managing it. 

Periodically I return to a book I stumbled across at some point called Pocket Peace.  The author reminds us “…there are times you can help and times you can’t.  Remember just feeling bad helps no one.”  He also suggests that we practice the mantra “Only I can destroy my peace and I choose not to.”

The invitation is open to share “two cups of tea” anytime at Hope’s Café, or anywhere you share companionship and conversation.

May we be bearers of hope, the “wait staff” of Hope’s Café for each other and all those we encounter.  Shalom, Kate

Pledging My Troth

As I write this on this our thirty-sixth anniversary, I think back on this quirky, amazing, sometimes rocky journey, we have been on together.  And I consider how difficulties can seem so distant and definitely surmountable when one is young and in love.  But to “plight” or “pledge” one’s “troth” (derived from the word “truth”), is a deep, lifelong commitment to riding out all the unforeseen events a lifetime can hold.

According to the site shunbridal.com, “The word “plight” here means “pledge”, and it signifies putting someone or something under risk. It is related to the words “plea”, “pledge”, and “please”. The speaker is declaring their willingness to take on risk and responsibility.

I can’t say that we have navigated every difficulty well.  Yet some of the toughest challenges we faced turned out to be the times when we pulled together the most effectively, truly operated as partners.

I know there are marriages that simply weren’t meant to happen in the first place, or evolve in such a way as to be unsustainable, and seem destined for the relationship graveyard.  But there is a lot to be said for persisting through the hardships a long-term relationship is bound to encounter.  Terry is still the person who makes me laugh the hardest—humor being a relationship essential in my estimation—and we both agree we are better people for having been married to each other.  As we face aging, the challenges increase pretty dramatically.  Yet the years of building a solid foundation seem to benefit us at this stage in our lives.

The invitation is open to share two cups of tea anytime at Hope’s Café or anywhere you share companionship and conversation.

May we bearers of hope, the “wait staff” at Hope’s Café, for each other and all those we encounter.  Shalom, Kate

“What me, worry?”

Two Cups of Tea at Hope’s Café

Once as a junior high friend’s mother was driving my friend and me to a Saturday movie, her car began to make a terrible knocking noise.  My immediate reaction was to start thinking “What is the problem?  Is it expensive to fix?  Will we be able to make it to our movie?”  Had my mother been driving I can imagine the pinched worried expression that would have appeared on her face.  My friend’s mother simply smiled and said “Well, isn’t this interesting?”  I was stunned.  She just calmly drove to a nearby auto mechanic business.  I have no idea whether we made it to the movie or not.  I suspect we did.  But what has stayed with me was that calm, unperturbed response of my friend’s mother. 

Sometimes in the night I wake to find myself feeling the heartbreak of the world and a sense of despair sweeping over me.  I think of Wendell Berry’s  poem “The Peace of Wild Things” (“When despair of the world grows in me/and I wake at the least sound/in fear of what my life and my children’s lives/might be”).  There is so much beyond my control.  Berry’s solution is to ground himself in nature, which surely is one way to renew ourselves, to maintain our equilibrium.  There are other ways to take care of ourselves.  We all know them but it never hurts to be reminded:  hydrate, seek to eat nutritious foods, meditate, exercise, promote good sleep habits, and look for those things that you can do in your own life circumstances.  Find what energizes you, a charitable organization you can offer your services or donate to; practice random acts of kindness; seek the means that empower you. 

The alternative is less than desirable.  While there is plenty to keep us awake at night, we have the choice not to allow the worry to be in the driver’s seat.  The potential consequences of permitting anxiety to be in charge are many: suppression of immune system, digestive disorders, muscle tension, short-term memory loss, premature coronary artery disease, heart attack, high blood pressure, increased risk of heart attack or stroke, and other results like disrupted work, strained relationships, decreased functioning in daily life. 

Here’s a bit of wisdom, followed by a challenge:

 “If worrying about the future made life better maybe I could see the point.  But all it does is make today worse.” 

“Do something today that your future self will thank you for.”

The invitation is open to share two cups of tea anytime at Hope’s Café or anywhere you share companionship and conversation.

May we bearers of hope, the “wait staff” at Hope’s Café, for each other and all those we encounter.  Shalom, Kate

Earth Angels

Two Cups of Tea at Hope’s Cafe

This is a true story of hospitality.  In 2010 Terry and I prepared to go to Costa Rica to learn Spanish at the Costa Rica Spanish Institute.  We arrived at the Atlanta airport ready to begin our journey only to discover Terry had brought old passports.  The airline employee who had been starting to check us in told us we had time to go back and get them.  Not so!  The current ones were of course at home in Chattanooga, a two hour drive at best and we had come on the shuttle.  We had no vehicle.

We went home, having booked the same flight for the next day.  I called the Institute to tell them of our delay and were told they would inform the host family. 

The next day we arrived in Atlanta with the correct passports.  We flew to Costa Rica and then rode a bus for four hours to our destination, arriving well after dark.  We looked for our host family.  There was no one.  We were in a place we didn’t know and didn’t speak the language.  It appeared we were in a “sketchy” part of town, adding to the sense of anxiety. 

One taxi stopped.  He didn’t speak English. We showed him the address we had for our host family.  He just drove off.  We had a telephone number but saw no pay phones.  We had our cell phones but no international plan and had no idea how to reach the family we were intended to stay with. 

Another taxi stopped and drove off without us.  We had traveled all day long and were very weary.  I don’t recall praying but I must have.  Suddenly a car pulled up and the American driver said “Do you need help?”  Yes!  Do we ever!  We showed him our card with contact information.  He called the family.  They had not gotten the message about the change in our arrival.  The staff at the institute had left the message with the young teenage son who failed to relay it to his mother.  Our “new best friend” knew where the family’s home was located and drove us there.  We were welcomed and at last were bedded down for the night after our long and stressful trek.

I considered that we were rescued by an Earth Angel, a fellow who had come from America to settle in Costa Rica twelve years before.  That he arrived just when we needed him is still a miracle to me.  This is a powerful reminder of the impact one act of kindness, one bit of hospitality, can have. 

The invitation is open to share two cups of tea anytime at Hope’s Café or anywhere you share companionship and conversation.

May we bearers of hope, the “wait staff” at Hope’s Café, for each other and all those we encounter.  Shalom, Kate

Have a Good Day on Purpose

Two Cups of Tea at Hopes’ Cafe

I recently discovered that I could see which posts had garnered the most views. “Have a Good Day on Purpose” topped the chart, published May 5, 2023. Given how the topic developed, I found it noteworthy that it was the most read of the posts. That seems worth re-posting as follows:

My great niece posted those words on her Facebook page.  Intrigued, I searched for the quote and discovered the complete quote, which is: “Have a good day on purpose, then elevate your efforts towards other and enjoy a great day.”  Ms. Toni Jenkins, author of a book titled Been Through It All,  is credited with the quote.  Jenkins’ book describes her difficult upbringing in a culture of drugs and abuse  and her ultimate survival.

              I thought of Abraham Lincoln’s statement that “People are usually about as happy as they make up their minds to be,” quite surprising given his propensity for depression.  His law partner gave the description that “His melancholy dripped from him as he walked.”  His best friend once had to remove razors and any other means of self-harm.  Another time neighbors stood suicide watch due to his talk of self-destruction.  Certainly he had the makings of depression.  At age nine he helped carve his mother’s casket.  His sister died at age 21.  He lost two young sons.  He faced many other challenges as well.

              In an age when suicide is the third leading cause of death in 15-24 year olds, and every day approximately 132 people die by suicide, these two quotes would seem to have a common theme of hope.  Life is possible even in the face of the most difficult of circumstances. Lincoln is still regarded as a great man and president. Jenkins is inspiring others to overcome their own obstacles.

              This is not to minimize how painful life can be nor how appealing it might be to someone to be free of the pain.  In the course of my career as a therapist, I had two people who died by suicide.  One was a young man, who at 18 was presented with a list from his mother of everything she had done and spent on his behalf, with the expectation that he pay her in full.  His sense of worthlessness was pervasive and no matter what safeguards we tried to put in place, his intention was to be released from what had been a miserable life.  The other was a widow with a lot of health problems, whose primary reason she felt to keep going was for her pet bird.  When she made arrangements for the bird, I feared she was going to soon seek the opportunity.  She actually was in the emergency room for an overdose when she found meds unmonitored and took all of them.  One must have great empathy for the immensity of the burdens some carry.

              On the other hand, a woman I had been seeing in therapy called me one day to say she had been to her lawyer, written her will and made arrangements for care for her seven year-old daughter.  She said she was on her way to kill herself and wanted to tell me goodbye.  In a voice I did not even recognize as my own, I heard myself say “No! You will come directly to my office immediately.”  Thankfully she did as this was before the era when there were crisis intervention teams and more resources for suicidal people.  She rallied and was able to recover her functioning. 

              It is not our job to be “saviors.”  But we can be companions on the journey.  As Ram Dass said “We’re all just walking each other home.”

              May we be bearers of hope, the “wait staff” of Hope’s Café for each other and all those we encounter.  Shalom, Kate

Hope’s Café Bonus:  We are urged to be more cautious about terminology when talking about suicide.  “Commit suicide” hearkens to the time when this was considered sinful, in the category of “committing adultery” or “committing a crime.”  Journalists are urged not to sensationalize reporting of suicides as that has the result of affecting vulnerable people inclined to self-harm. 

Memories

Two Cups of Tea at Hope’s Cafe

Following my last post where I described my relationship over the years with my foster sister, she and I shared many additional memories which led me to invite her to do a guest post. She declined my offer but sent me a meditation that arrived in her inbox the same day my last post was published. I find it worth sharing. It is such a tribute to her that she survived horrific experiences and recognizes that integration of all these memories to a whole cloth is possible. The message speaks to all of us as well as we each weave the tapestries of our lives.

This meditation is from DailyWord, an outreach of Unity, which was established in 1889 by Charles and Myrtle Fillmore. They were interested in providing spiritual resources to people of all faiths rather than establishing a church. Eventually people drawn to their philosophy began to establish Unity churches.

From DailyWord June 6, 2025

“Memories: I give thanks for the blessing of my memories.”

“My memories are the gossamer threads of my life experiences, each strand tying one experience to another to weave a tapestry that is the picture of my life.

“Each recollection connects my past experiences with the present. Some are tender, some can make me laugh, and some might bring a tear to my eye.

“I give thanks for lessons learned, relishing the happy times and blessings, releasing any unhappy ones. All form the fiber of my being. They comprise the sum total of who I am, how I respond to present circumstances, and how I weigh the decisions I make for the future.

“My memories shape my thoughts, supporting me as fuel for my spiritual growth as well as light that guides me everyday.”

The invitation is open to share two cups of tea anytime at Hope’s Café or anywhere you share companionship and conversation.

May we bearers of hope, the “wait staff” at Hope’s Café, for each other and all those we encounter.  Shalom, Kate

Love Actually

Two Cups of Tea at Hope’s Cafe

My junior year in college I was startled when I called home only to hear the phone answered by a voice I didn’t recognize: “Emerson residence, Cathy speaking.”  Now even more confused, as at that time I was going by Kathy, I managed to ask to speak to my mother. 

This is how I learned that when I first started college, my parents had applied to be foster parents.  Given how hard foster homes are to come by, it is astonishing that my parents hadn’t been contacted until that year for an emergency placement “for the weekend.”  As often happens in Foster Care World, “temporary” can extend for lack of another placement. 

I had two older brothers.  As a child, I had sometimes pretended I had a sister and complained to my mother that I didn’t have one.  It was clear when I returned home at the end of my junior semester, that I now had a “sister.”  Cathy, who had begun to go by Catherine to decrease confusion, was seven years younger than I.  I tried to include her in some of my activities, though her attention-seeking behavior was annoying.  Once my boyfriend and I invited her to go to the lake with us to walk around, feed the ducks. She managed, quite deliberately, to fall in the water.  Neverthelesss, I endeavored to be the big sister: sewed her some new clothes for her birthday, invited her for a weekend at my dorm. 

We were perhaps developing some ties. But I was pretty consumed with my own life:  college graduation, taking my first job, moving away from home.  By the time Catherine was 17, she left my parents’ home and neither they nor I expected she would be back in our lives.  But the next year she asked to return.  My parents agreed and she lived with them for another year.  I was in Tennessee in graduate school by then and only kept up with her through my mother.  I recall she came to my parents’ fiftieth anniversary celebration and I saw her again at a family reunion some years later. I was always happy to see her.   But it was when my mother died that she and I really connected in a deeply shared grief.  My mother’s influence had made all the difference to her and she clearly loved her. 

After the funeral she and I spent some time together.  I learned the story behind the emergency placement all those years ago with my parents.  She, though not her  sister, had been adopted by a couple after she and her sister were removed due to severe neglect by their mother.  The mother would leave for days at a time while Catherine, not yet school age, was tasked with taking care of her younger sister. 

The adoptive home had become a living nightmare, the adoptive mother having some severe mental health problems.  She became abusive even to the point of locking Catherine out in the middle of a severe storm.  As the abuse escalated, Catherine felt this woman was intent on killing her.  One evening she gathered what cash she could find and some pancake mix, which must have been the only food she could readily find, and took a little suitcase to a local hotel to check in.  The desk clerk checked her in and promptly called the police, which led to the desperate call from the foster care worker to my mother.

The year following my mother’s death, my father died.  Catherine came to help me during that time and our connection and affection deepened.  I could not love her more if she were my biological sister.  I am grateful my parents took her in. I admire her for taking that opportunity over time to ground herself, to develop into a beautiful, caring human being.

  My mother had wanted to be a nurse but her father had thought that not fitting, claiming nurses had gotten a bad reputation as loose women in World War I.  He determined she should major in English.  Even that was not to be, as he died during her freshman year. Mother was unable to return the following year due to finances.  Catherine established a scholarship fund for nurses at the Baptist University in Oklahoma in memory of my mother. Eventually, Catherine became a nurse herself. 

“The most powerful force in life is love,” said Nelson Rockefeller.  I would add that love actually can start from such a tiny seed, as small as answering a foster care worker’s phone call, and develop in extraordinary ways. 

The invitation is open to share two cups of tea anytime at Hope’s Café or anywhere you share companionship and conversation.

May we bearers of hope, the “wait staff” at Hope’s Café, for each other and all those we encounter.  Shalom, Kate